Information about this disorder, conferences, data for physicians, updates and links.

Information about the organization and their mission. Extensive database about the disease as well as support groups, research and links to other resources.

Includes brochures, FAQs, medical exchange, research, and a message forum as well as details about the organization and its events, conferences and fund raising.

Natalie's Wish is a non-profit organization. Their mission is to fund research to find better medications and ultimately a cure for this condition.

Charity dedicated to assisting those with Cystinosis, their families, medical researchers and increasing the awareness of this condition.

Doctors Andrew Doan and Andrew Lee describe the diagnosis of a young girl with the condition. Features information on the epidemiology, signs, symptoms and prescribed treatment.

Portal features annotated links for health professionals.

Features photographs of an affected eye, information on clinical features and treatment.